New Orleans Saints legend Steve Gleason is receiving the Congressional Gold Medal on Wednesday, Jan. 15 in Washington, D.C. We asked photographer Ted Jackson to spend Monday, Dec. 16 with Steve and his family as they went about a normal day, capped off by attending the Saints' game against the Colts in the Mercedes-Benz Superdome.
Steve Gleason gets a warm hug from his 8-year-old son, Rivers during recess at Stuart Hall School.
Occupational therapist Jenni Doiron gets Steve Gleason ready for his day.
Framed by his elevated foot rests, Steve Gleason watches as occupational therapist Jenni Doiron helps him get ready for his day.
Steve Gleason watches as occupational therapist Jenni Doiron gets him ready for his day.
Occupational therapist Jenni Doiron gets Steve Gleason ready for his day.
Occupational therapist Jenni Doiron drives Steve Gleason to Stuart Hall School.
Steve Gleason talks with the children during lunch at Stuart Hall School. Through his computer, Steve said the lunch duty "was one of his most rewarding activities." Steve's 8-year-old son, Rivers, attends there.
Steve Gleason talks with the children during lunch at Stuart Hall School. Through his computer, Steve said the lunch duty "was one of his most rewarding activities." Steve's 8-year-old son, Rivers, attends there.
Steve Gleason talks with the children during lunch at Stuart Hall School. Through his computer, Steve said the lunch duty "was one of his most rewarding activities." Steve's 8-year-old son, Rivers, attends there.
Steve Gleason talks with the children during lunch at Stuart Hall School. Through his computer, Steve said the lunch duty "was one of his most rewarding activities." Steve's 8-year-old son, Rivers, attends there.
Occupational therapist Jenni Doiron helps Steve Gleason maneuver the campus of Stuart Hall School.
Steve Gleason watches his 8-year-old son, Rivers play football with his friends during recess at Stuart Hall School.
Steve Gleason watches his 8-year-old son, Rivers play football with his friends during recess at Stuart Hall School.
Steve Gleason watches his 8-year-old son, Rivers play football with his friends during recess at Stuart Hall School.
Upon arriving home, Steve Gleason is greeted by his wife Michel and their 14-month-old daughter Gray.
Upon arriving home, Steve Gleason is greeted by his wife Michel and their 14-month-old daughter Gray.
Michel Gleason and 14-month-old Gray play in the driveway doorway as Steve rests in the background.
14-month-old Gray Gleason occupies herself with self discovery as Steve rests in the background.
While Michel Gleason gets dressed, Steve entertains Gray with a buckled-in joy ride around the house.
Michel Gleason and caretaker Kyle Olasin take care of business while Gray entertains herself on the floor with Steve's equipment.
While Michel Gleason gets dressed, Steve entertains Gray with a buckled-in joy ride around the house.
While Michel Gleason gets dressed, Steve entertains Gray with a buckled-in joy ride around the house.
While Michel Gleason gets dressed, Steve entertains Gray with a buckled-in joy ride around the house.
While Michel Gleason gets dressed, Steve entertains Gray with a buckled-in joy ride around the house.
While Michel Gleason gets dressed, Steve entertains Gray with a buckled-in joy ride around the house.
Michel Gleason helps Steve clean up while he entertains Gray.
Caretaker Kyle Olasin drives Steve Gleason to Stuart Hall School to pick up Rivers.
Caretaker Kyle Olasin drives Steve Gleason to Stuart Hall School to pick up Rivers.
Caretaker Kyle Olasin drives Steve Gleason to Stuart Hall School to pick up Rivers.
Rivers (and Steve) Gleason shout out a greeting as caretaker Kyle Olasin drives them past the Stuart Hall crossing guard, a daily ritual that leaves everyone smiling.
Caretaker Kyle Olasin helps Steve Gleason out of the van as Rivers heads into the house.
Caretaker Kyle Olasin helps Steve Gleason out of the van as Rivers heads into the house.
Steve Gleason works on his computer while Michel and Rivers share a private moment.
Rivers Gleason rests his hand on his father's hand as they talk about his day at school.
Michel Gleason shows off Rivers' schoolwork to Steve.
Rivers poses a question as Michel and Steve Gleason work on their computers in the afternoon as Gray naps.
Steve Gleason works on his computer while Michel helps Rivers with his homework.
Michel Gleason reads the mail to Steve as Rivers works on his homework.
Steve Gleason rests in his room in the late afternoon before preparing for the evening outing, a Monday Night Football game with the Saints.
Steve Gleason rests in his room in the late afternoon before preparing for the evening outing, a Monday Night Football game with the Saints.
Steve Gleason rests in his room in the late afternoon before preparing for the evening outing, a Monday Night Football game with the Saints.
Steve Gleason heads out alone to the garden for a short afternoon nap.
Steve Gleason naps in the garden outside his home.
Rivers Gleason flexes his muscles in his favorite T-shirt as he dresses for the big Monday Night Football game with the Saints.
Steve Gleason smiles as he arrives at the Superdome for the Saints' Monday Night Football matchup against the Indianapolis Colts.
Helped by his caretaker Kyle Olasin, Steve Gleason passes by adoring fans as he arrives at the Superdome for the Saints' Monday Night Football matchup against the Indianapolis Colts.
Rivers and Michel Gleason look on as caretaker Kyle Olasin helps Steve on the sidelines at the Superdome for pre-game activities for the Saints' Monday Night Football matchup against the Indianapolis Colts.
Rivers Gleason plays catch with a family friend while Steve watches on the pre-game sideline.
Steve Gleason maneuvers the pre-game sidelines for the Saints' Monday Night Football matchup against the Indianapolis Colts.
Steve and Michel Gleason pose with their children, 8-year-old Rivers and 14-month-old Gray.
Steve and Michel Gleason maneuver the pre-game sideline with their children, 8-year-old Rivers and 14-month-old Gray.
Steve and Michel Gleason maneuver the pre-game sideline with their children, 8-year-old Rivers and 14-month-old Gray.
Steve maneuvers the pre-game sidelines for the Saints' Monday Night Football matchup against the Indianapolis Colts.
Steve worms his way into a group photo with alumni from the Saints Super Bowl team during pre-game of the Saints' Monday Night Football matchup against the Indianapolis Colts.
Through his computer software, Steve Gleason chats with alumni from the Saints Super Bowl team on the sidelines prior to the Saints' Monday Night Football matchup against the Indianapolis Colts
14-month-old Gray works on a snack as Steve and Michel Gleason maneuver the pre-game sidelines for the Saints' Monday Night Football matchup against the Indianapolis Colts.
Michel Gleason helps Gray get settled in her dad's lap as Steve maneuvers the pre-game sidelines for the Saints' Monday Night Football matchup against the Indianapolis Colts
Steve ignores all the greetings and well-wishers around him for a few minutes on the sidelines as he calibrates his computer after arriving at the Superdome for the Saints' Monday Night Football matchup against the Indianapolis Colts.
With cheers of support from fans and "Sign Man" Larry Rolling, Rivers and Steve maneuver the pre-game sidelines for the Saints' Monday Night Football matchup against the Indianapolis Colts.
Steve parks his wheelchair outside the Saints locker room to cheer on Thomas Morstead (6) and the rest of the players as they emerge fore their Monday Night Football matchup against the Indianapolis Colts.
Steve parks his wheelchair outside the Saints locker room to cheer on Sean Payton and the rest of the team as they emerge fore their Monday Night Football matchup against the Indianapolis Colts.
Steve parks his wheelchair outside the Saints locker room to cheer on Drew Brees and the rest of the team as they emerge for their Monday Night Football matchup against the Indianapolis Colts.
Rivers Gleason watches the Saints players emerge from the locker room as he rests against his father's lap.
Steve and Michel Gleason enjoy the Monday Night Football matchup against the Indianapolis Colts with their children Gray and Rivers.
Steve, Michel, Gray and Rivers Gleason enjoy the Saints Monday Night Football matchup against the Indianapolis Colts
Steve Gleason and friends celebrate Drew Brees' record-breaking touchdown during the Monday Night Football matchup against the Indianapolis Colts.
Steve Gleason slips out early from the Monday Night Football matchup against the Indianapolis Colts with their children Gray and Rivers
Caretaker Kyle Olasin helps Steve Gleason load up after the Monday Night Football matchup against the Indianapolis Colts.
By Terri Troncale, Contributing writer
In the 244 years since Congress awarded George Washington the first Congressional Gold Medal, a handful of individual athletes have received the honor: Baseball Hall of Famers Roberto Clemente and Jackie Robinson, boxing champ Joe Louis, Olympic track star Jesse Owens, golf legends Byron Nelson, Arnold Palmer and Jack Nicklaus.
This week, former New Orleans Saints special teams ace Steve Gleason will be added to that list.
Gleason, who has done groundbreaking work to support people with amyotrophic lateral sclerosis since he was diagnosed with ALS in 2011, will receive the medal during a ceremony Wednesday, Jan. 15, in Washington.
After Congress confirmed his nomination for the medal in December 2018, Gleason put the moment in perspective.
"Talk about feeling undeserving! The list of past winners is filled with enlightened and powerful giants of humanity. It's ridiculously overwhelming," he said in a written statement. "I am honored and accept the Congressional Gold Medal for all the families who have been diagnosed with ALS, as well as anyone struggling to overcome life's inevitable adversities."
Gleason, who spent seven years on the Saints, is one of fewer than 200 people who have received the gold medal, according to a news release about the award ceremony. He joins a list of medal winners that includes Mother Teresa of Calcutta, the Wright Brothers, Charles Lindbergh, Thomas Edison, Dr. Jonas Salk and astronauts Neil Armstrong, Buzz Aldrin and Michael Collins, who took Apollo 11 to the moon. Those are some of the "giants of humanity" Gleason alluded to when the legislation honoring him passed in 2018.
Congress recognized his own contributions to humanity. The Stephen Michael Gleason Congressional Gold Medal Act honors his work through his foundation "to provide individuals with neuromuscular diseases or injuries with the assistance they need to thrive, his advocacy for federal legislation ensuring people living with diseases such as ALS have access to speech generating devices, and his leadership in bringing together the single largest coordinated and collaborative ALS research project in the world."
Louisiana Sen. Bill Cassidy filed the original legislation for the medal, which is Congress' highest honor for civilians. "Steve Gleason has shown tremendous courage and resolve in the face of ALS. He has remained positive in the face of extreme adversity, inspiring all who hear his story," the senator said in a news release about the award ceremony.
U.S. Rep. Steve Scalise, who represents Louisiana's 1st Congressional District, also praised the way Gleason has dealt with ALS.
"Steve Gleason is a true Louisiana hero, not only for his time as a New Orleans Saint, but even more through the bravery and courage he has displayed for people with disabilities all across the country throughout his battle with ALS," Scalise said in a written statement. "This recognition is a true testament to how powerful a mark Steve Gleason has made in our community and across the country. His spirit and determination serve as an inspiration to us all, and I can think of no better way to honor him for his strength and courage."
